Listen, Listen, Listen to the Patient with Juliet Hawkins Artwork

The Sick Gaze

Welcome to the Sick Gaze podcast, a series where we dive deep into the complexities of life with chronic illness, attempt to break down gendered barriers within healthcare, and advocate for disability justice. Drawing inspiration from Laura Mulvey’s concept of the male-gaze, The Sick Gaze challenges the existing narrative norms by offering a platform for diverse lived experiences. In a world where stories are often filtered through able-bodied perspectives, our podcast strives to bring visibility to invisible conditions. Join us as we navigate the complexities of life with chronic illness, fostering empathy, understanding, and ultimately, creating a community that embraces and validates the stories that have long remained in the shadows.

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The Sick Gaze

Listen, Listen, Listen to the Patient with Juliet Hawkins

June 23, 2024 • Molly Dickerson • Season 1 • Episode 10

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In this powerful TENTH EPISODE (woot woot) of the Sick Gaze Podcast, I sit down with the incredible Juliet Hawkins for an illuminating discussion on living with Ehlers-Danlos syndrome, POTS, and mast cell activation syndrome. As both a CV nurse and a patient with chronic illnesses, Juliet offers a unique and valuable perspective on the critical importance of self-advocacy in healthcare.

We explore the value of strong friendships while dealing with chronic conditions, highlight the necessity of speaking up and asking for what you need, and how important it is for providers to LISTEN TO THE PATIENT. Juliet provides keen insights into the often-overlooked patient experience, particularly in teaching hospitals where strict adherence to textbooks can overshadow the real-world needs of patients.

Join us as Juliet shares her compelling journey, offers strategies for effective self-advocacy (there are some REALLLYYYY GOOD tips in this episode) , and underscores the significance of truly listening to patients. This episode is a must-listen for anyone seeking to understand the complexities of navigating healthcare with chronic illnesses.

LINKS/RESOURCES MENTIONED IN THIS EPISODE:
- Book: Taming the Zebra, its much more than hypermobility by Patricia Scott and Heather Purdin
- Link to presentation on EDS and vocal cord dysfunction: https://youtu.be/da0r6HZ7qHs?si=q2F6rFzIntPDYM0y

Take care of your spoons!
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