Connective Tissue Issues; hEDS & Chronic Illness with Amy Weintraub Artwork

The Sick Gaze

Welcome to the Sick Gaze podcast, a series where we dive deep into the complexities of life with chronic illness, attempt to break down gendered barriers within healthcare, and advocate for disability justice. Drawing inspiration from Laura Mulvey’s concept of the male-gaze, The Sick Gaze challenges the existing narrative norms by offering a platform for diverse lived experiences. In a world where stories are often filtered through able-bodied perspectives, our podcast strives to bring visibility to invisible conditions. Join us as we navigate the complexities of life with chronic illness, fostering empathy, understanding, and ultimately, creating a community that embraces and validates the stories that have long remained in the shadows.

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The Sick Gaze

Connective Tissue Issues; hEDS & Chronic Illness with Amy Weintraub

February 17, 2025 • Molly Dickerson • Season 2 • Episode 10

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In this episode of The Sick Gaze, Amy Weintraub shares how hypermobile Ehlers-Danlos syndrome (hEDS) has shaped much of her young adult life. She opens up about the difficulty of surgery after surgery as a young person, the emotional weight of adjusting expectations for both herself and those around her, and the challenges of navigating a healthcare system that often fails to listen to young women. From college struggles to self-advocacy, Amy’s story is one of resilience, adaptation, and the pursuit of a life that honors both ambition and limitation.

Follow Amy as she shares her chronic illness journey on Instagram @amyrosaliee

Take care of your spoons!
If you're interested in being interviewed for this podcast or want to let me know your thoughts on this episode, email me at dickersonmm@g.cofc.edu and follow @thesickgazepod on instagram!